GendersInX.org

Andre's Blog

Sun, 27 Apr 2008 18:21:43 GMT

I started this blog to link back to GIX and such. This quickly turned out that I can write what I feel and the things I obcerved in life iand in all the different projects I am involved with. I have contact with a lot of people some of which effect me deeply and some that effect others. All are important to me.

Here is the link to my Blog:

interxsites.fresh-blog.net

I hope you enjoy the reads.

Cool online tool

Thu, 20 Mar 2008 00:50:40 GMT

http://www.visualthesaurus.com/

Here is a cool tool that brings a thesaurus to the mind. Free within a few searches, but can be purchased or subscribed to for a fee.

Our mix of people here.

Tue, 08 Jan 2008 19:28:12 GMT

I am writing this post with fire in my heart and I�ll tell you why.

It has come to light that most people when faced with a subject of Intersex, automatically think that because they are consorting with those that are that they must be one too. Intersex had never been about a force of being, it is about a freedom to be whomever you feel is most comfortable, a personal choice.

Look at the many types of food we have in our grasp. If your peas and carrots are beside each other does that ...

Seniors Living website

Sat, 29 Dec 2007 04:57:10 GMT

http://getyoureducationhere.com

What is my site about?...

Senior Living website,Seniors and the Internet

Part Time Jobs for Seniors Everything You Always

Wanted To Know About Senior Living

Bob

ParentsInX.org

Sun, 16 Dec 2007 18:48:12 GMT

ParentsInX.orgThe Online Community for Parents. Connecting Families with Congenital Gender Variations in Children or thier Parents. Our Parent Support Forum deals with children and Parent issues and concerns. Included are various Congenital Gender Variations with specifics to chromosomal conditions. ParentsInX is a forum to come and relax in the atmosphere of a home. The forum is strictly moderated to ensure the safety of it's members.

New site for Parents

Sun, 16 Dec 2007 07:56:39 GMT

ParentsInX.org

The Online Community for Parents.

Connecting Families Living with Congenital Gender Variations

in Children or their Parents.

I am proud to announce that this site is now open to Parents. Invited are Parents of a child or children of a Congenital Gender Variation (CGV) or Parents that are a CGV themselves. This site is run by Parents.

The theme is centered around the home life of a Parent and what concerns and issues we encounter to share.

ParentsInX.org is ...

MY SON, MY STRUGGLE

Sun, 02 Dec 2007 21:46:54 GMT

MY SON, MY STRUGGLE

Mother of an intersexed child

(c) 2007

Edited and Translated from the French by Curtis E. Hinkle, Founder of the Organisation Intersex International

The name of the child is replaced by _____ for privacy.

------------------------------------------------------------------------------

Sometimes life can have surprises in store for us. Sometimes they are good, sometimes bad. However, they are also unforeseeable, even unbelievable.

I am the mother of a young girl ...

Psychology Basics

Fri, 23 Nov 2007 21:54:20 GMT

A person I have got gotten to know, opened up her site called Psychology basics. She has an interesting approach to what makes us tick and our outlook on life and what we can do to improve it.

I do believe this site will take off very well and I wish Robyn all good fortune in her endeavor.

http://psychologybasics.forumotion.com/index.htm

Informed Consent, Parental Permission, and Assent in Pediatr

Thu, 15 Nov 2007 12:48:19 GMT

Informed Consent, Parental Permission, and Assent in Pediatric Practice

Committee on Bioethics

AN OVERVIEW

Since the 1976 publication of an AAP policy statement on the legal concept of informed consent in pediatric practice, the concept has evolved and become more formal.1 A better understanding now exists as to how physicians should collaborate with patients and parents in making these decisions. Patients should participate in decision-making commensurate with their development; they ...

CARES: Congenital Adrenal Hyperplasia

Tue, 13 Nov 2007 02:46:38 GMT

CARES

http://www.every1cares.org/

I have reservations about this group which are ethical and moral. I do not like the fact that this group is basically NOT by people affected. I have issues with pre-natal screening when abortion is presented as a "solution". I also do not agree with early "castration" - that is what I call it.

However, for medical information about the endocrine disorder, it is a good place to start. For actual ethical issues, not reccommended.

Keep Kids Healthy

Tue, 13 Nov 2007 01:34:33 GMT

www.keepkidshealthy.com/welcome/conditions/turner_syndrome.html

Medical Dictionary

Tue, 13 Nov 2007 01:00:55 GMT

I often utilize Merriam-Webster Dictionary when I question spelling, my own. So today I used it to look up a word and I saw that this online dictionary allows you to look in a Medical Dictionary.

Find it: www.m-w.com

An unique perspective

Mon, 12 Nov 2007 16:51:18 GMT

To date GendersInX has made much headway in it's young life. Let's recap on what has been done.

February 2007, GendersinX was born in another server. The server was very limited and the storage even more, so after 31 members and over 1600 posts later, it was time to move to another location but what was apparent, was that there was a need for people to get to know each other in thier perspective condition, what we have in common.

June 2007, GendersInX re-opened it's doors here, in the new ...

KS 47/XXY NEW RESEARCH 10-27-07

Thu, 01 Nov 2007 14:08:55 GMT

KS&A | Current Studies and Clinical Trials

Reifenstein Syndrome

Thu, 01 Nov 2007 02:31:15 GMT

Here is something interesting. Read this at http://www.whonamedit.com/synd.cfm/1286.html

Reifenstein syndrome is similar to Klinefelter-Reifenstein-Albright syndrome (aspermatogenesis-gynaecomastia syndrome) but the XY chromosome pattern is normal. It is a male pseudohermaphroditism marked by deficiency of androgen receptors, hypospadias, hypogonadism and gynaecomastia. The affected males are sterile, but germ cells with mitotic activity are present in the testes. It is a familial condition ...

Sharing her Story

Wed, 24 Oct 2007 22:01:25 GMT

As I posted already I just read Middlesex for my book club (thanks, Oprah). I am wondering about attending the next meeting. I am really stuck on whether or not I should share her situation with others. I don't know that I could discuss this book without sharing my experience as a parent learning about gender and Turner's/xoxy.

Am I taking a choice away from her by telling other people, or am I normalizing it for her?

How have other parents dealt with this issue?

About Support groups

Sun, 28 Oct 2007 07:18:13 GMT

This is taken from an article in the OII. I thought it best to include it here, since GendersInX is a support group and is ever expanding to bring those little know conditions to the forefront.

The article can be found here : http://www.intersexualite.org/support_groups.html

Terms such as "abnormal", "disorder" and "dysfunction" reinforce negative stigmas that can contribute to negative sense of self. - Esther Morris Leidolf, http://www.mrkh.org/

Support ...

Wanted to introduce myself

Fri, 20 Jul 2007 04:56:35 GMT

My name is Kimberly and I am the mother of a 23 month old daughter,

Emily, with 46xy,45x Turner's syndrome and mixed gonadal

dysgenesis. Emily was born with ambiguous genitalia and she was

diagnosed a week after her birth with TS. She had laparascopic surgery

at 4 mo. of age and we discovered she had 2 ovotestes and they were

removed at 7 mo. Since then, she has been happy and healthy and so far

seems to only have the short stature part of TS. She is still growing

on the same curve ...

Administration team

Wed, 19 Sep 2007 18:02:49 GMT

These are the people that are involved at GendersInX.

Peer Support:

A group dedicated to helping out the new members and those of whom have some apprehension in posting thier thoughts.

Peggy (peggy@GendersInX.org)

Justin47xxy (just@GendersInX.org)

bobas56 (bob@GendersInX.org)

Resource personnel :

A group who are well versed in thier own conditions and provide support in said conditions.

Dianne B, PAIS Resource (DianneB@GendersInX.org)

Peggy, AIS Resource (peggy@GendersInX.org)

Curtis, ...

Leg Pains

Mon, 17 Sep 2007 19:33:08 GMT

The following link leads you to the Parent section of the babycenter, a site dedicated to children's health.

It describes the probable cause of leg pains. This is something that is an issue with us adults of Klinefelter's as well. Are they actual leg pains with an underlying condition or are they growing pains ? The article explains this.

http://parentcenter.babycenter.com/0_growing-pains_68369.pc

Andre

New Category

Mon, 17 Sep 2007 17:18:46 GMT

Teaching others about us.

Included in this new Category is R&D and Studies.

All too often have I seen researchers come into other sites ans getting the bum-rush. I think that is not only rude but not in our best interest. On the opposite side, I have seen many researchers come in for meaningless study that did not go anywhere at all or studies that were edited to suit the going fashion of the site it was posed on.

In order for others to treat us better, we need to teach them better. ...

Tom's story

Mon, 17 Sep 2007 15:17:48 GMT

This is one of the most comprehensive stories I have read, certainly we all can relate to it if not a part of it. It's an interesting story of Tom finding out that he is XXY and still wanting to have a child with his wife.

Enjoy the read.

http://www.phillyburbs.com/pb-dyn/news/111-09162007-1408286.html

Andre

New Co-Admin

Tue, 04 Sep 2007 18:27:51 GMT

I would like to announce that Kimberly will now be filling that position from here on in. Along with her regular duties here, she will help in maintaining this site.

Welcome on board, Kimberly.

Andre

Welcome to Parents of children with CAH

Sat, 18 Aug 2007 23:12:34 GMT

Thanks for visiting our site. We hope that you will find support and information to help you here. We also are here to learn from you and invite you to share with us about your experiences as a parent of a child with CAH.

As the resource person for CAH, I would first like to make it clear that I do not accept that CAH is an intersex condition, something that is often the impression that is given on many intersex sites and it is certainly not a disorder of sex development or DSD. CAH is an ...

Welcome to the New GendersInX

Mon, 16 Jul 2007 20:31:27 GMT

Hi Folks;

So, how do you like the new site ?

We had changed over from the easyfreeforums because I was not happy with a lot of the features there including privacy.

This site boasts many features but most of all it has a better security than the other and it can hold more posts without slowing us down.

If any of you have a hard time reading anything, please make it known by sending me a private message and I see to it that we have this resolved.

Andre

The old GendersInX

Mon, 16 Jul 2007 21:35:27 GMT

The GendersInX site from easyfreeforum will be closed a week from the date of this site's Domain name change.

If you would like to take your topics or posts from that site, you can do so by cutting and pasting it to a word document or directly to here.

When the forum is closed, I will not be able to access it in any shape or form.

Andre

Contact person

Wed, 18 Jul 2007 15:15:47 GMT

Your contact person for this forum is Curtis.

Curtis is well versed in conditions surrounding CAH and has a special interest for those who need answers to perhaps sensitive topics surrounding thier children.

You can ask Curtis anything.

Andre

Build it and they will come.

Fri, 27 Jul 2007 17:26:14 GMT

That might have worked for Kevin Costner in the movie Field of Dreams, but not on GendersInX.

Here we need people to talk about thier conditions in the view of teaching another. Not everyone knows about your particular condition but you do. You may not know it 100%, it is not expected of you to know it all.

We would like to get to know not only you but what you go through. You will find that there are others of different conditions that have gone through practically the same thing.

You ...

You folks are amazing

Thu, 26 Jul 2007 16:12:25 GMT

Did you know that ?

No only are you dealing with whatever medical issues you have, you are dealing with your own issues to yourself and how you relate to others.

A person not seeing all these issues would have given up a long time ago, but not folks like us. We keep on going and deal with things on a constant basis.

I find that is nothing short of courage, a whole bunch of it. Our conditions are our strength, not a weakness. Sure, we get down about it sometimes and we build friendships ...

How to talk to your child about sexual development in TS...

Wed, 25 Jul 2007 03:27:48 GMT

Well, lets face it, lack of normal sexual development is one of the hallmarks of TS. As someone who grew up with TS. How should you approach it with your child, when the time comes?

Well, my first advice would be

1) Approach it BEFORE the time comes...kids are reaching adolesence and puberty at an earlier age these days, meaning that your child is likely to start learning the facts about "normal" sexual development at school and other places. If you let you child think ...

Welcome Parents of 5-alpha Reductase

Fri, 20 Jul 2007 18:19:37 GMT

Welcome to the Parents forum.

Only you, the resource person and the site moderators can view and comment on this forum. Your resource person for this forum is Sophia who is well versed in 5-alpha. Please direct your questions to her.

If you need any other assistance, you may direct them to me here or in private by using the private message system provided in this site.

Andre

Why GendersInX ?

Thu, 19 Jul 2007 20:50:26 GMT

When I started GendersInX, I had come from a site that talked about Klinefelter's Syndrome to the most intimate detail. This was XXYTalk.com, I was a moderator there. I had chatted with a lot of people there not just about Klinefelter's but about everything.

In that time, I had met a person with Turner's Syndrome and I was intrigued with her attitude and how similar we actually were even though our conditions are very much different. That got me thinking that there must be more conditions ...

Welcome Parents

Thu, 19 Jul 2007 00:34:01 GMT

Your resource person here is Peggy.

Peggy is well versed in the conditions of AIS and all varients thereof. Should you need clarity on something, please ask her.

Peggy will introduce herself in a short while.

Andre

Welcome Parents of Klinefelter's Children

Wed, 18 Jul 2007 15:46:48 GMT

This forum is hidden to ensure your privacy.

The contact person for this forum is Boz and myself. Boz has been well versed in topics and circumstances surrounding Klinefelter's and the issues surrounding it. I am a Klinefelter's Mosaic and I have fathered a wonderful daughter.

Please feel free to ask any and all questions surrounding your child and the issues you face. No question are too awkward. If either Boz or I don't know the answer, we will find out and come back to you with ...

Welcome Parents

Wed, 18 Jul 2007 15:12:46 GMT

Your contact person for this forum is Kimberly. She also acts as Moderator for the entire forum.

Kimberly is well versed in all aspects of Turner's Syndrome. Please direct your questions to her should you need clarity on certain issues. I assure you that if Kimberly does not know the answer, she will do some research in order for the question to become clear.

Kimberly has all the best intentions for people of Turner's and especially the children.

Andre

Klinefelter's Awareness week

Tue, 17 Jul 2007 18:43:32 GMT

In association with XXYTalk.com, a blog has been set up for Klinefelter's awareness week starting the third week of March of any given year. It is important that we all make people aware of Klinefelter's not just for the purpose of the general public and of the Medical Profession, but mostly for those who have just dicovered that they have or suspect to have Klinefelter's Syndrome.

Our mission is to deliver awareness of Klinefelter Syndrome (XXY) and the education of those who could have ...