An Encouraging Support for People with Congenital Gender Variations
All points of view, if presented in a civil manner, are welcome. |
| Welcome to GendersinX | Hello;
Below you will find the personal messages from each of the resource people that are in GendersInX. All of them are of that very condition themselves and have a great amount of knowledge in those areas. Still, as human beings, it is hard to know everything but we know where to find the most accurate information out in the web.
Please take the time to look over the particular condition that interests you. You will also note that we do not talk about our conditions only, but act in together to create a good community to learn from eachother.
Andre
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| Welcome to those of Turner's Syndrome | Hello,
As a fellow TSer, I'd like to welcome you TS Survivors (and your truly are that survivors), TS Parents, friends, and family to GendersInX. You may have some hesitancy about discussing TS on a board that also discusses other chromosome and genetic conditions, those being 5 Alpha Reductase, Androgen Insensitivity Syndrome, Congenital Adrenal Hyperplasia, Klinefelter’s Syndrome. However, after meeting the administrator of this site as well as some others, I have learned that we all have a lot in common, and have had similar experiences with our conditions.
I would strongly suggest you give the wider community here a chance. I have personally found that the medical community doesn't seem to know much about TS, as a lot of people in general don't. I feel the best way to change this is to put ourselves out there and let the public know what TS is how it affects us both medically and emotionally, the human aspect of it. What I personally have loved about this site is that it attempts to be a mix of both. Here at GendersInX, you're not "Just another Turner's", you're a human being and will be treated as such. You will not have assumptions made about you simply based on your condition.
Here you will find people of both sexes-who are male or female, as well as those who are "intersexed", and see themselves as both or neither genders. Don't let this discourage you from posting. In fact it could help to be open about your condition in the future to share your experiences with TS with males, as most of us with TS will have to do at some point in our lives. I have found being a moderator here at GendersInX to be such a worthwhile experience. It has made me feel important and respected to be a part of this community, and that's what I want for everyone of you with TS.
I Look Froward to hearing from you,
Kimberly
TS Resource Person |
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| Welcome to Parents of children with CAH | Thanks for visiting our site. We hope that you will find support and information to help you here. We also are here to learn from you and invite you to share with us about your experiences as a parent of a child with CAH.
As the resource person for CAH, I would first like to make it clear that I do not accept that CAH is an intersex condition, something that is often the impression that is given on many intersex sites and it is certainly not a disorder of sex development or DSD. CAH is an endocrine disorder and only some children with CAH would ever be considered intersexed. For information on the endocrine disorder there are many good sites such as CARES and I recommend that you visit these other sites for that sort of information. We are here to provide support to and learn from parents who have children who not only have CAH but who have atypical sex characteristics which are a result of it.
Our primary approach is not to be judgmental but to accept parents and their choices regarding the treatment of CAH in their children that do have atypical sex characteristics. We are here to provide a safe and nurturing atmosphere where parents and other people who are living in bodies that have been labeled intersexed can talk not only about the body but also about gender issues that are often associated with CAH as well as the overall well-being of both the child and the parents.
We do not accept that all CAH-XX’s are girls. Some will have complex identities and some may transition later in life. We do not feel that the term "intersex" applies to the identity of the child when we use that word. We feel that the parents and the child are the only ones who are in a position to be authorities on such intimate aspects of one’s being.
We want you to celebrate your child, share with us how special your child is and we will feel honored to have you with us because you are VERY special to us and your love for your own child is something that touches us very deeply and we thank you for your support of us also.
In solidarity,
Curtis
CAH Resource Person
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| Welcome to those of 5 Alpha Reductase Deficiency | Hello and Welcome to the 5 Alpha Reductase Deficiency Section of GendersInX.
5 alpha reductase deficiency is often misunderstood in the media and online information often seems to be very leading. With the usual description being "They are born outwardly looking like girls, but during their teens they develop male genitalia, become musclebound and all self identify as men"
This is not strictly true. Basically it occurs in XY individuals who were born with the inability to convert one form of testosterone to another. People will often be born with either ambiguous or female looking genitalia. During puberty more masculine characteristics may appear, but again this can vary from individual to individual. and not all do end up wanting to be men. some do. and others do not.
With all this dogma and confusion, having 5 alpha is very isolating. Sometimes it feels like you sense of self, identity and even health are subject to the whims of social "norms" and people who believe they know "What is best"
Well this is a safe place to talk about it. feel free to say how you feel.
Sophia Siedlberg.
5-ARD Resource Person
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| Welcome to those with AIS and their loved ones | Welcome to GendersInX, a good place to discuss all aspects of Androgen Insensitivity Syndrome (AIS) from a perspective that includes persons with other conditions. All persons with AIS, and parents of children with AIS, are welcome here, whatever the form of the condition they have, whatever their life situation.
It is my own wish that all of you for whom AIS is an issue can find something in this forum that fills your needs and that you have joyful and fulfilling lives.
Peggy
AIS Resource Person
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| Welcome to those of Klinefelter's Syndrome | Welcome to GendersInX where people of Klinefelter’s Syndrome are supported.
Klinefelter’s Syndrome is a name taken from Dr. Henry Klinefelter who discovered that certain infertile males have a chromosome anomaly of 47xxy. He and his team had concluded that many symptoms of the test subjects have had a lot in common. Sites such as this and those in www.KlinefelterSyndromeAware.com commemorate this discovery by Internationally dedicating a week for more awareness of Klinefelter’s Syndrome. In my opinion, Dr. Klinefelter would have proud to see that we have come very far in discovering more than our particular condition, that we have in fact found many similarities between us and other people’s genetic conditions.
Here in GendersInX we discuss not only our medical challenges but also our challenges in every day life. We have come to discover that we are not alone in many subjects surrounding Klinefelter’s. Here we discuss our own thoughts and feelings on certain subjects. It would be good to remember that although we have chromosomes of an extra X, many of us do identify as male, female, Intersex or a Gender Blender.
This is a comfortable site and openness is encouraged, no one from the outside can read this unless they are registered with us. Feel free to share and encourage another.
Andre & Boz
Klinefelter’s Syndrome Resource People
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| | Mutilations or non-consensual normalization treatments?Statement and clarification from OII available with hyperlinks athttp://www.intersexualite.org/Intersex_treatments.htmlSummary:We have been asked why OII's Official Positionon Health Care does not mention mutilations. There are many reasons forthis. Most intersex activism has been focused on just denouncingsurgery (basically feminizing surgery), while insisting on a genderassignment as soon as possible. However, this does not seem to havehelped intersex infants and adults. As a matter of fact, we are nowfaced with a more pathological definition of intersex as a geneticdefect (the real goal of the new DSD terminology is to classify allintersex variations by their genetic etiology) and non-consensualtreatments are more justifiable now with the new terminology of“disorders of sex development” than when intersex activism began in theUnited States. |
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